Our April 15th blog spoke about the unfortunate
and rare disease, lamellar ichthyosis, afflicting 7 year old Evens. His
mother’s frantic plea for assistance in relieving her son’s pain and suffering
was heard by TVEP who then sought help from HFL followers…and they responded!
We wish to thank everyone who answered with words of encouragement, prayers,
suggestions, financial support and those who made important connections.
Thank you Maureen for contacting your physician friend, head
of the UTMB dermatology department who has had experience working in
underserved countries. Your suggestions for preventing infection and
alleviating the odor problem were invaluable. Shoba, Betty, Karen, Evelyn and
so many other followers helped out, urging us to continue to seek answers.
Stacey from Hong Kong reached out to a contact connected to
the Netcare Group that operates the largest private hospital network in South
Africa. Because of Stacey’s diligence,
we now have a Netcare representative who is overseeing Evens’ care. They will provide all of the required skin
applications and consultations. Medications
will be a last resort due to unwanted side affects but daily salt baths are
recommended. Thankfully Evens’ current medical
needs are now being taken care of.
HFL will continue to
address Evens’ other numerous challenges and we will keep you posted as to the
outcome. He needs a large outdoor tub in which to bathe since his family has no
indoor plumbing. Discrimination and teasing remains troublesome so we will look
for funds to buy a laptop, tablet or ipad to assist in his schooling. These are
hopefully all things to come.
Today we thank you for your support and continued awareness
that YOU can make an important difference in someone’s life without spending a
dime. ‘Like’ us on facebook and help us
spread the word.
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| Evens |
