Konanani Evens Mutwanamba, 7 years old, was born with a rare
skin disease called lamellar ichthyosis. Soon after birth “the skin began
cracking all over his body”. His Mom
says that he struggles to cope during hot days,
“When it is hot, his skin oozes blood. Most of the time he cries from
unbearable pain. During summer, I sleep with a bucket full of water so I can
put him in, to cool his body whenever he starts crying. I normally do not enjoy
summer because of this torture my son goes through….”
Evens is a second grader who, while the other children
initially shunned him, now enjoys the company of classmates. He is a brave
young man.
TVEP and HFL supporters are working to make Evens life a
bit easier.
We’ll continue to keep you updated. Thank you!
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Visit our website at www.hopeforlimpopo.org.
